Saturday, February 4, 2012

Welcome to Cancerland

[ed. The decision this week by the Susan G. Komen Foundation to deny, then reinstate funding for Planned Parenthood prompted many to take a closer look at the organization and who's behind it. Here's an excellent article by Barbara Ehrenreich from 2001.]

Fortunately, no one has to go through this alone. Thirty years ago, before Betty Ford, Rose Kushner, Betty Rollin, and other pioneer patients spoke out, breast cancer was a dread secret, endured in silence and euphemized in obituaries as a "long illness." Something about the conjuncture of "breast," signifying sexuality and nurturance, and that other word, suggesting the claws of a devouring crustacean, spooked almost everyone. Today however, it's the biggest disease on the cultural map, bigger than AIDS, cystic fibrosis, or spinal injury, bigger even than those more prolific killers of women -- heart disease, lung cancer, and stroke. There are roughly hundreds of websites devoted to it, not to mention newsletters, support groups, a whole genre of first-person breast-cancer books; even a glossy, upper-middle-brow, monthly magazine, Mamm. There are four major national breast-cancer organizations, of which the mightiest, in financial terms, is The Susan G. Komen Foundation, headed by breast-cancer veteran and Bush's nominee for ambassador to Hungary Nancy Brinker. Komen organizes the annual Race for the Cure©, which attracts about a million people -- mostly survivors, friends, and family members. Its website provides a microcosm of the new breast-cancer culture, offering news of the races, message boards for accounts of individuals' struggles with the disease, and a "marketplace" of breast-cancer-related products to buy.

More so than in the case of any other disease, breast-cancer organizations and events feed on a generous flow of corporate support. Nancy Brinker relates how her early attempts to attract corporate interest in promoting breast cancer "awareness" were met with rebuff. A bra manufacturer, importuned to affix a mammogram-reminder tag to his product, more or less wrinkled his nose. Now breast cancer has blossomed from wallflower to the most popular girl at the corporate charity prom. While AIDS goes begging and low-rent diseases like tuberculosis have no friends at all, breast cancer has been able to count on Revlon, Avon, Ford, Tiffany, Pier 1, Estee Lauder, Ralph Lauren, Lee Jeans, Saks Fifth Avenue, JC Penney, Boston Market, Wilson athletic gear -- and I apologize to those I've omitted. You can "shop for the cure" during the week when Saks donates 2 percent of sales to a breast-cancer fund; "wear denim for the cure" during Lee National Denim Day, when for a $5 donation you get to wear blue jeans to work. You can even "invest for the cure," in the Kinetics Assets Management's new no-load Medical Fund, which specializes entirely in businesses involved in cancer research.

If you can't run, bike, or climb a mountain for the cure -- all of which endeavors are routine beneficiaries of corporate sponsorship -- you can always purchase one of the many products with a breast cancer theme. There are 2.2 million American women in various stages of their breast-cancer careers, who, along with anxious relatives, make up a significant market for all things breast-cancer-related. Bears, for example: I have identified four distinct lines, or species, of these creatures, including "Carol," the Remembrance Bear; "Hope," the Breast Cancer Research Bear, which wears a pink turban as if to conceal chemotherapy-induced baldness; the "Susan Bear," named for Nancy Brinker's deceased sister, Susan; and the new Nick & Nora Wish Upon a Star Bear, available, along with the Susan Bear, at the Komen Foundation website's "marketplace."

And bears are only the tip, so to speak, of the cornucopia of pink-ribbon-themed breast-cancer products. You can dress in pink-beribboned sweatshirts, denim shirts, pajamas, lingerie, aprons, loungewear, shoelaces, and socks; accessorize with pink rhinestone brooches, angel pins, scarves, caps, earrings, and bracelets; brighten up your home with breast-cancer candles, stained-glass pink-ribbon candleholders, coffee mugs, pendants, wind chimes, and night-lights; pay your bills with special BreastChecks or a separate line of Checks for the Cure. "Awareness" beats secrecy and stigma of course, but I can't help noticing that the existential space in which a friend has earnestly advised me to "confront [my] mortality" bears a striking resemblance to the mall.

This is not, I should point out, a case of cynical merchants exploiting the sick. Some of the breast-cancer tchotchkes and accessories are made by breast-cancer survivors themselves, such as "Janice," creator of the "Daisy Awareness Necklace," among other things, and in most cases a portion of the sales goes to breast-cancer research. Virginia Davis of Aurora, Colorado, was inspired to create the "Remembrance Bear" by a friend's double mastectomy and sees her work as more of a "crusade" than a business. This year she expects to ship 10,000 of these teddies, which are manufactured in China, and send part of the money to the Race for the Cure. If the bears are infantilizing -- as I try ever so tactfully to suggest is how they may, in rare cases, be perceived -- so far no one has complained. "I just get love letters," she tells me, "from people who say, 'God bless you for thinking of us.'"

The ultrafeminine theme of the breast-cancer "marketplace" -- the prominence, for example, of cosmetics and jewelry -- could be understood as a response to the treatments' disastrous effects on one's looks. But the infantilizing trope is a little harder to account for, and teddy bears are not its only manifestation. A tote bag distributed to breast cancer patients by the Libby Ross Foundation (through places such as the Columbia Presbyterian Medical Center) contains, among other items, a tube of Estee Lauder Perfumed Body Crème, a hot-pink satin pillowcase, an audiotape "Meditation to Help You with Chemotherapy," a small tin of peppermint pastilles, a set of three small inexpensive rhinestone bracelets, a pink-striped "journal and sketch book," and -- somewhat jarringly -- a small box of crayons. Marla Willner, one of the founders of the Libby Ross Foundation, told me that the crayons "go with the journal -- for people to express different moods, different thoughts. . ." though she admitted she has never tried to write with crayons herself. Possibly the idea is that regression to a state of childlike dependency puts one in the best frame of mind with which to endure the prolonged and toxic treatments. Or it may be that, in some versions of the prevailing gender ideology, femininity is by its nature incompatible with full adulthood -- a state of arrested development. Certainly men diagnosed with prostate cancer do not receive gifts of Matchbox cars.

by Barbara Ehrenreich  |  Read more: